This film is dedicated in loving memory of our family members, friends and colleagues who left us too soon, but taught us much about living with purpose and having resiliency. We hope this community-based film project serves to educate and inspire!
SECIAL THANKS FOR PROVDING THE FINANCIAL SUPPORT TO MAKE THIS FILM POSSIBLE
AMANDA GELLMAN
MANAN Strategy Consultants (AKA: MANAN Media Productions)
with
Bernarda Doctor
Canadian Foundation for AIDS Research (CANFAR)
Families First
KIDSCARE Philipines
REACH2.0 / REACH NEXUS
The Venerable Ron Matthewman
Thank you to all of our Supporters and Donors.
A full list can be found on the Credits + Supporters page of this website.
LEAD SUPPORTERS
AMANDA GELLMAN
MANAN Strategy Consultants (AKA: MANAN Media Productions)
with
Bernarda Doctor
Canadian Foundation for AIDS Research (CANFAR)
Families First
KIDSCARE Philippines
REACH2.0 / REACH NEXUS
The Venerable Ron Matthewman
Thank you to all of our Supporters and Donors.
A full list can be found on the Film Credits + Supporters page of this website.
Hearing an unexpected and/or unwanted medical diagnosis can bring on worries and fears. In the 80s and 90s, tens of thousands of people living with HIV/AIDS (PHAs) were left with much uncertainty and, thus, “the AIDS movement” was born.
Our film shows how a group of PHAs from southwestern Ontario, Canada, who were diagnosed with HIV between 1987 and 2013, stayed meaningfully engaged. At first, the news was life-limiting, but they turned the news around by choosing to support one another, help others and make the world a better place.
The film begins by showing where people were in their lives when first diagnosed, and the unrest this news caused for them and their loved ones. It gives a glimpse of the journeys of seven persons living with HIV/AIDS (PHAs) in the film (in order of appearance): Greg Scratch, Joanne Schingh, Mark McCallum, Don Turner, Jack Haight, Eli Martin and Steve Pratt. These stories represent millions of others around the world.
Michael Brennan, Executive Director, Pozitive Pathways, formerly the AIDS Committee of Windsor, and Sean Rourke, PhD, a renowned HIV/AIDS researcher from Windsor who is now with St. Michael’s Hospital in Toronto back up these statements and add new information. Kenny Gbadebo, Executive Director, Youth Connection Association, comments on behalf of new Canadians.
The film looks at the obstacles and set-backs experienced by long-term survivors – isolation, poverty, PTSD, unemployment, and more. The participants talk about a 'system” that is not set up to take care of aging PHAs. The film shows how they take care of one another, which is an important part of what Jack is referring to when he says "HIV put me on a spiritual quest."
Recovering from the earth-shattering news, long-term survivors in part made it because they found new purpose in life by helping others. The PHAs discuss moments that shaped their lives, and the relationships they built along the way. Their resiliency is our inspiration!
Aging and HIV: A Story of Resiliency is available for FREE viewings only, and educational purposes. We hope that it serves to combat the isolation of long-term survivors, many of whom were determined advocates when the movement needed them most.
We also hope that our film inspires anyone who has been diagnosed, or has a family member or friend who has been diagnosed, with HIV/AIDS or any life-threatening or serious illness. The message is universal, regardless of illness, ethnicity, age or gender.
We noticed the 'tiny tree' that was about 3 ft tall while we were on location, which we then included in the production. It was growing in the massive field behind the home of Jack Haight and Don Turner. The tree somehow felt connected to the story ... and we decided that in some ways it symbolized the lives of the long-term survivors. The tree appeared to have struggled, possibly near death at one point, but instead it survived and thrived. Today, it stands out in the field, as if proud to be watching over the Queen Anne's Lace growing all around it.
Written, Produced and Directed by
AMANDA GELLMAN
Director of Photography
EMILIO CARRO
Managing Editor
NICOLE GELLMAN
Contributing Editor
AMANDA GELLMAN
Music and Scoring
IAN MCGREGOR SMITH
Sound Editor
PAUL WOOLLEY
Videographers
SEBASTIEN GASPAR-WOODS
BEN SROKOSZ
RING TAIL FILMS
PAUL WOOLLEY
Assistant Editor
NANTHANAA MUTHARASU
Still Photography
Written, Produced and Directed by
AMANDA GELLMAN
Director of Photography
EMILIO CARRO
Managing Editor
NICOLE GELLMAN
Contributing Editor
AMANDA GELLMAN
Music and Scoring
IAN MCGREGOR SMITH
Sound Editor
PAUL WOOLLEY
Videographers
SEBASTIEN GASPAR-WOODS
BEN SROKOSZ
RING TAIL FILMS
PAUL WOOLLEY
Assistant Editor
NANTHANAA MUTHARASU
Still Photography
LARRY DES ROSIERS
MARC FRENCH
PAUL WOOLLEY
... and the PARTICIPANTS
Translators
Aaron Fauteux (French)
Isabel Kylie (Spanish)
*Language subtitles
can be selected when viewing
Songs
"Look Around"
Written by
© GREGORY SCRATCH
Performed by
IAN MCGREGOR SMITH
AVONLEA SMTIH
"The Return"
Written by
© FERRON
℗ Nemesis Publishing
Performed by
Me, Her and Her
"LGBT Blues"
Written by
© GREGORY SCRATCH
Performed by
GREGORY SCRATCH
ELI MARTIN
Shoot Locations
CAMP WENDAKE, Anglican Diocese of Huron
CARDINAL PLACE
GELLMAN HOME
HAIGHT / TURNER HOME
OHTN - Ontario HIV Treatment Network
POZITIVE PATHWAYS, formerly AIDS Committee of Windsor
SCRATCH HOME
UNITED WAY OF CHATHAM-KENT
WINDSOR REGIONAL HOSPITAL
News Sources
CBC WINDSOR
THE WINDSOR STAR
Artwork
SAMANTHA AINSWORTH
INES CHERIF
Web Design
NANTHANAA MUTHARASU
Transcription
RUCHINA PIYA
LEAD SPONSORS
AMANDA GELLMAN
MANAN Strategy Consultants (AKA: MANAN Media Productions)
with
Bernarda Doctor
and
Canadian Foundation for AIDS Research (CANFAR)
Families First
KIDSCARE Philippines
REACH2.0 / REACH NEXUS
The Positive Effect+
The Venerable Ron Matthewman
LEAD COLLABORATORS
POZITIVE PATHWAYS COMMUNITY SERVICES, formerly AIDS Committee of Windsor
with
Media Arts Community Centre & Museum
Moksha Canada Foundation
Seniors' Secretariat Fund, Province of Ontario
United Way Chatham-Kent
Windsor Centre for Film, Digital Media & the Creative Arts
Youth Connection Association Inc.
DONORS
Georgina Burns
Nadine Deleury
Adam Gellman
Marc Gellman
Mitch Gellman
Nicole Gellman
Larry Grove
Jank Words & Pictures
Ada Johnson
Kevin Kroetsch
Tim Major
Trevor McLoughlin
Nancy Nosanchuk
Steve Pratt
Carolyne Rourke
Gregory Scratch
Stephanie Smalls
Michael Stasko
Brian White
ACKNOWLEDGEMENTS
(those not mentioned elsewhere)
Zach Andary
Charlie Berg
Mike Cardinal
Rev. Elise Chambers
Sunil Channan
Claudio D'Andrea
Jennifer Deslippe
Lori Doyle
Larry Des Rosiers
Marc French
Jordan Haight
David Holman
Emily Hu
Henry Johnson
Karen Kirkwood-Whyte
Jack Layton Family
Julie Leadbetter
Anita Market
Darlene Mahler
Brian Masse, MP
Rob Miller
Lo
ACKNOWLEDGEMENTS
(those not mentioned elsewhere)
Zach Andary
Charlie Berg
Mike Cardinal
Rev. Elise Chambers
Sunil Channan
Claudio D'Andrea
Jennifer Deslippe
Lori Doyle
Larry Des Rosiers
Marc French
Jordan Haight
David Holman
Emily Hu
Henry Johnson
Karen Kirkwood-Whyte
Jack Layton Family
Julie Leadbetter
Anita Market
Darlene Mahler
Brian Masse, MP
Rob Miller
Lois Rindlisbacher
Scott Roose
Gisele Seguin
Michele Sharp
Robin Sherman
Tom Taylor
Laila Wood
Amanda Gellman, Director: In the 90s, served as the Executive Director of the AIDS Committee of Windsor as well as a Founding Board Member of AIDS Walk Canada. During this time she worked with numerous AIDS Service Organizations across Canada, as a speaker and mentor on fundraising and community development.
PHOTO: A 1995 photo of Amanda at the AIDS Walk Celebration Gala. Amanda has since maintained many relationships with those living with HIV/AIDS (PHAs), some of whom are in this film. They were the inspiration for this film. "Aging & HIV: A Story of Resiliency" is meant to be a community and educational project, available FREE to the public.
Diagnosed 1987
"The 'gift' in it for me at that time was that it blew the closet door off my closet and then I realized I never did want it there."
Diagnosed 1988
"I thought I was going to end up being an accountant or a teacher or something but I get to be a musician, which I guess I should have been a musician long time ago."
Diagnosed 1993
" I get it from my mom that the magic to life is helping people - it lightens your load makes you feel good about who you are as an individual."
Diagnosed 1993
"Prepare, be wise, listen to the people that have come before you because they are knowledge keepers."
Diagnosed 1993
"I am proud of myself the things I have accomplished (as a nurse), taking care of people that I have met."
Diagnosed 1997
"I love to be with women especially those that are a newly diagnosed. I want to be supportive and help them in any way I can."
Diagnosed 2013
"At that moment in my life it was very, very difficult but I have learned that I am able to give back, and it's like I have been given a second chance."
"There was a great movement in the past where those long-term survivors who are here today really were strong activists in the community ."
"HIV seems to be affecting many people directly or indirectly nowadays, and it’s not something for them to be ashamed of."
"HIV has shown how you can have a patient-centred healthcare system that works and listens."
World AIDS Day 2020 will be like no other.
COVID-19 is threatening the progress that the world has made in health and development over the past 20 years, including the gains we have made against HIV.
Like all epidemics, it is widening the inequalities that already existed.
Gender inequality, racial inequality, social and economic inequalities. We are becoming a more unequal world.
I am proud that over the past year the HIV movement has mobilized to defend our progress, to protect people living with HIV and other vulnerable groups and to push the coronavirus back.
Whether campaigning for multimonth dispensing of HIV treatment, organizing home deliveries of medicines or providing financial assistance, food and shelter to at-risk groups, HIV activists and affected communities have again shown they are the mainstay of the HIV response. I salute you!
It is the strength within communities, inspired by a shared responsibility to each other, that has contributed in great part to our victories over HIV.
Today, we need that strength more than ever to beat the colliding epidemics of HIV and COVID-19.
Friends, in responding to COVID-19, the world cannot make the same mistakes it made in the fight against HIV, when millions in developing countries died waiting for treatment.
Even today, more than 12 million people are still waiting to get on HIV treatment and 1.7 million people became infected with HIV in 2019 because they could not access essential services.
That is why UNAIDS has been a leading advocate for a People’s Vaccine against the coronavirus.
Global problems need global solidarity.
As the first COVID-19 vaccine candidates have proven effective and safe, there is hope that more will follow, but there are serious threats to ensuring equitable access. We are calling on companies to openly share their technology and know-how and to wave their intellectual property rights so that the world can produce the successful vaccines at the huge scale and speed required to protect everyone and so that we can get the global economy back on track.
Our goal of ending the AIDS epidemic was already off track before COVID-19. We must put people first to get the AIDS response back on track. We must end the social injustices that put people at risk of contracting HIV. And we must fight for the right to health. There is no excuse for governments to not invest fully for universal access to health. Barriers such as up-front user fees that lock people out of health must come down.
Women and girls must have their human rights fully respected, and the criminalization and marginalization of gay men, transgender people, sex workers and people who use drugs must stop.
As we approach the end of 2020, the world is in a dangerous place and the months ahead will not be easy.
Only global solidarity and shared responsibility will help us beat the coronavirus, end the AIDS epidemic and guarantee the right to health for all.
Thank you.
Winnie Byanyima
Executive Director of UNAIDS
Under-Secretary-General of the United Nations
In June 1981, scientists in the United States reported the first clinical evidence of a disease that would later become known as acquired immunodeficiency syndrome, or AIDS. Its cause, the human immunodeficiency virus (HIV), was identified in 1983.
The UN family has been in the vanguard of this progress. Since 1996, its efforts have been coordinated by UNAIDS — the Joint United Nations Programme on HIV/AIDS. UNAIDS is an innovative joint venture of the United Nations family, which brings together the efforts and resources of 11 UN system organizations to unite the world against AIDS. These are: UNHCR, UNICEF, WFP, UNDP, UNFPA, UNODC, the ILO, UNESCO, WHO and the World Bank.
Ending AIDS by 2030 is an integral part of the Sustainable Development Goals (SDGs), which were unanimously adopted by United Nations Member States in 2015.
REPORTED IN 2020
75.7 million [55.9 million–100 million] people have become infected with HIV since the start of the epidemic.
32.7 million [24.8 million–42.2 million] people have died from AIDS-related illnesses since the start of the epidemic.
There are 4.2 million people aged 50 and older living with HIV today.
The funding gap for HIV responses is widening. Momentum established following global agreement on the Millennium Development Goals in 2000 has been lost in the Sustainable Development Goal era. Increases in resources for HIV responses in low- and middle-income countries halted in 2017, with funding decreasing by 7% between 2017 and 2019 (to US$ 18.6 billion in constant 2016 United States dollars).
The total funding available in 2019 for HIV in these countries amounted to about 70% of the 2020 target set by the United Nations General Assembly.
This day honours long-term survivors of the epidemic and raises awareness of their needs, issues and journeys.
While effective HIV treatments have decreased the likelihood of AIDS-defining illnesses among people aging with HIV, HIV-associated non-AIDS conditions are more common in individuals with long-standing HIV infection. These conditions include cardiovascular disease, lung disease, certain cancers, HIV-Associated Neurocognitive Disorders (HAND), and liver disease (including hepatitis B and hepatitis C), among others.
In addition, HIV appears to increase the risk for several age-associated diseases, as well as to cause chronic inflammation throughout the body. Chronic inflammation is associated with a number of health conditions, including cardiovascular disease, lymphoma, and type 2 diabetes. Researchers are working to better understand what causes chronic inflammation, even when people are being treated with ART for their HIV disease.
HIV and its treatment can also have profound effects on the brain. Although AIDS-related dementia, once relatively common among people with HIV, is now rare, researchers estimate that more than 50 percent of people with HIV have HAND, which may include deficits in attention, language, motor skills, memory, and other aspects of cognitive function that may significantly affect a person’s quality of life. People who have HAND may also experience depression or psychological distress. Researchers are studying how HIV and its treatment affect the brain, including the effects on older people living with HIV.
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